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HomeINTERVIEWSBe proud and focus, Lucy Mailafia advises persons with albinism

Be proud and focus, Lucy Mailafia advises persons with albinism

Lucy Mailafia is a lady with albinism hailed Akwanga LGA, Nasarawa State but now resides in Jos, Plateau State. She is a staff of The Albino Foundation (TAF), Plateau State. Her father had minor albinism while her mother doesn’t. She is only girl in the family of six and the only one with albinism.

She had her primary and secondary education in Nasarawa State and now she is in Plateau State working with TAF, Plateau State Chapter.

She had a chat with our correspondent in Plateau State, Bulus Baba Izang and she shared her challenges, her love life and her future aspiration.


Lucy Mailafia

TQM: Can you tell us about the challenges you’ve encountered as a person with albinism?

The major challenge I am facing is poor vision and the sunburns especially when I was in school. I had to practically go very close to board to see properly but overtime I made some friends whom I could collect their notes and that made it easy for me as a child, I had no idea that exposure to the sun wasn’t good for my skin but I got to learn a lot about myself as I grew older.

TQM: Tell us when you got to join The Albino Foundation?

I got to know about the albino foundation in 2015 but joined officially in 2017.

TQM: How does it feel to be a part of The Albino Foundation?

It is a family. We are close knit and look out for people with albinism, it feels good to be a part of it.

TQM: Are you in a relationship?

I have been in a couple of relationships but I won’t give details (laughs).

TQM: What are your future goals and what is your advice to people with albinism?

I would love to further my studies to PhD level and my advice to people with albinism is that they should not lose focus or give up on what can be achieved. You can do it if you will to do it.

TQM: Thank you for your time. We wish you the best.

Thank you for having me.


This story is part of The Qualitative Magazine Project “CONNECTING OUR VOICES TO THE WORLD”-propagating the potentials and challenges of Persons with Disabilities in Plateau State supported by VOICE NIGERIA
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