As the world marks World Cancer Day 2025 under the theme “United by Unique,” the Albinism Association of Nigeria (AAN) has issued a passionate plea for immediate action to address the escalating health crisis facing persons with albinism (PWAs) in Nigeria. The association warns that without urgent intervention, more lives will be lost to skin cancer, the leading cause of death among persons with albinism in the country
The grim reality is unfolding at an alarming rate. In just the past few days, three members of the association have died due to skin cancer, while many others are battling for their lives—some confined to hospital beds, others suffering in silence at home without access to medical care. The AAN is now calling for immediate government intervention, stronger policy support, and increased public awareness to tackle what they describe as an urgent and preventable crisis.
A Silent Epidemic: The Unseen Struggles of Persons with Albinism
Albinism is a rare genetic condition that results in little to no melanin production, leaving individuals highly vulnerable to ultraviolet (UV) radiation and, consequently, an increased risk of skin cancer. For PWAs in Nigeria, the situation is exacerbated by the lack of affordable sunscreen, specialized dermatological care, and government-backed health programs that could provide much-needed relief.
Speaking at a press conference in Abuja, Dr. Mrs. Bisi Bamishe, the National President of AAN, expressed deep sorrow over the increasing number of deaths, stating:
“Our people are dying in silence. The threat of skin cancer looms over every person with albinism in Nigeria, yet little is being done to protect and support us. Within days, we lost three of our members. How many more must die before the government takes decisive action?”
The pain in her voice was echoed by Comrade Aghanti Sunday Smith, Chairman of AAN, who emphasized that beyond the statistics, these are real people—brothers, sisters, sons, daughters—whose lives could have been saved with timely intervention.
Government Inaction and the Desperate Need for Change
Despite years of advocacy, the Nigerian government has yet to implement substantial policies to support persons with albinism in their battle against skin cancer. Many PWAs cannot afford basic skin care essentials like sunscreen, protective clothing, and routine skin screenings, which are critical in preventing cancer from developing or progressing.
Unlike other African countries where governments provide free sunscreen and routine skin checks for PWAs, Nigeria has yet to introduce a structured national health program tailored to their needs.
“It is heartbreaking that in a country as vast and resourceful as Nigeria, persons with albinism are still left to fight skin cancer alone,” lamented Dr. Bamishe.
AAN’s Five-Point Demand for Immediate Action
In response to the crisis, the AAN has outlined a five-point demand for urgent action from the Nigerian government, stakeholders, and international organizations:
1. Inclusion of Persons with Albinism in Government Healthcare Programs
- The Federal Ministry of Health must integrate free and subsidized skin cancer treatments into public healthcare services.
- Skin cancer treatment for PWAs should be included under the National Health Insurance Scheme (NHIS).
2. Free Sunscreen and Protective Gear Distribution
- The government must establish a national sunscreen distribution program, ensuring free or affordable access to sunscreen for low-income PWAs.
- Provision of wide-brimmed hats and protective clothing to help PWAs shield themselves from harmful UV radiation.
3. Legislative Support and Policy Implementation
- National and state lawmakers must pass and enforce policies that recognize the health challenges faced by PWAs.
- Budget allocations should be made for skin cancer prevention, screening, and treatment.
4. Partnerships with Local and International Organizations
- Collaboration with global health organizations, research institutions, and donor agencies to fund long-term solutions for healthcare access.
5. Public Awareness and Nationwide Sensitization
- Launching mass media campaigns to educate PWAs and the general public on early detection, prevention, and available treatment options.
- Schools, workplaces, and communities must be engaged in combating myths and misinformation about albinism.
A Nation’s Call to Action: Who Will Step Up?
With over two million persons with albinism in Nigeria, the fight against skin cancer is not just a personal struggle—it is a national concern. Every day, more PWAs are diagnosed, yet most lack the financial means to seek proper medical care. The absence of support structures has turned what should be a manageable condition into a death sentence.
AAN’s call for action extends beyond government intervention. The association is also urging:
- Private organizations to contribute through corporate social responsibility (CSR) programs.
- Health professionals to offer free screenings and consultations in underserved communities.
- The media to amplify the voices of PWAs and shed light on their struggles.
- The general public to challenge the stigma surrounding albinism and advocate for inclusive policies.
On this World Cancer Day 2025, as the global community unites to fight cancer, Nigeria must not remain on the sidelines. The time for endless discussions has passed. The time to act is NOW.
Final Words: A Plea for Humanity
Ending her address, Dr. Bamishe made a heart-wrenching appeal:
“How many more of our members must we bury before the government listens? How many more lives must be cut short before action is taken? Our fight is not just for survival—it is for dignity, for equal rights, and for the simple chance to live without fear of a preventable disease. We call on all Nigerians: Stand with us. Fight with us. Let’s save lives together.”
The message is clear: the lives of persons with albinism in Nigeria are hanging in the balance. What happens next depends on how the nation responds. Will Nigeria finally take a stand?
For the thousands of PWAs at risk, the answer could mean the difference between life and death.
“Stay Informed, Stay Inspired! Click the link below to Join The Qualitative Magazine WhatsApp Channel Today for Exclusive Updates on Disability Advocacy and Inclusion!”
